Sleeping Beauty

I got a message today, saying that Kataraina's condition had worsened overnight and she had continued to have seizures. She is breathing oxygen via CPAP, and she has still not woken up.

They have increased her medications as much as they can for her weight, so now it is a waiting game.

• We wait to see if her glycine levels will decrease.
• We wait to see if she opens her eyes.
• We wait to hear her whimper, squawk, squeak or cry.
• We wait for her to kick her legs and wave her arms.

Kataraina's Aunt Viv (her mum's sister) just got back from working a rafting/kayaking season in Norway on Saturday. I hope that Kataraina plans to get well soon and stick around for a lot longer, because she is sleeping through a whole lot of opportunities for crazy fun with Viv!

It looks like she is subtly regressing to the sort of condition she was in after birth, when she was in Middlemore Hospital. I hope this is not the case. Though the actions are similar - going from conscious to drowsy, to losing her 'voice', to becoming floppy and going to sleep - she was a lot worse at that time, perhaps because she was receiving no medication at all.

I'm being optimistic and hoping she pulls through, but we can only cross our fingers for another miracle for our baby. In the meantime, her aunties and cousins went to the drawing area at Starship tonight and made a little card with a bird on it, a kayaker made out of pipe cleaners, and a painting covered in glitter and stars that read "Get Well Soon, Kataraina". So at least there are things to brighten her room, so when she does open her eyes, she'll see her pictures and a bunch of new soft toys, as well as her mum and dad and all the family.

PS.Tthe charger for the digital camera has been lost, so we're having to resort to less computer-friendly options! :)