Ticklish Tot

I went to the hospital to visit Kataraina and her mum this evening. Kat is still Lil Miss Floppy, but a new development - she responds to tickling!

If you tickle her under her armpits, she raises her arms above her head. It's so funny and adorable.

She moved her arms a little while I was holding her and even opened one eye slightly.

However, the not-so-great news is that she had 10 seizures since last night, each lasting for a few minutes at a time and pushing her heart rate up between 180 and 195 (The normal rate would be around 120).

So this means she won't be home by the weekend. Her Vigabatrim dose is as high as it can be, and they won't increase her Sodium Benzoate any higher either. This is because of her bodyweight. If they gave her more, well, the results could be fatal.

I just happened to have a measuring tape in my handbag, too (as ya do) and we took a rough height measurement while she was laying in her cot. She's about 66cm long now!

Will post more as it comes to hand.