Update 4 - Starting Steroids

This morning, Kataraina's mum told me that baby has begun a course of steroids (she couldn't remember the name of them at the time she told me). Baby's seizures have increased in frequency to approximately one an hour, so she is being weaned off the Vigabatrin at the same time that she is starting the steroids.

The steroids, it is hoped, will reduce the Infantile Spasms, though the possible side effects include:

• puffiness/swelling
• breathing difficulty
• lowered resistance to infection (ie weakened immune system)
• agitation/irritability
• delirium

Her course of steroids will go for two weeks, so hopefully she progresses in terms of her seizure activity during that time. However, it does mean that she'll be in Starship Hospital for a while yet.