Update 3 - Morning Spasms

Kataraina's mum visited me this morning and told me that she had a cluster of seizures/spasms this morning that lasted for 17 minutes. She's still in the observation period for the increased Vigabatrin, so there probably isn't anything will change yet. By tomorrow, if she hasn't improved, then they will most likely begin her on steroids, though no action can be confirmed at this stage until we get to that point.

Dr Leonard (Callum's locum) said the Palliative Care Team at Starship are hoping to get a chance to speak with Kataraina's mum and dad about support they can provide since they are becoming regular Starship residents. Though Kat's mum says it's not about supporting a family whose child is dying, but about what options there are in terms of extra care and comfort.

From the Palliative Care Team's webpage: "Palliative Care for children and young people is an active and total approach to care embracing physical, psychological, emotional, social, cultural and spiritual elements. It focuses on enhancement of quality of life for the child or young person and support for the family throughout the course of the illness, death and bereavement. It includes the management of distressing symptoms (physical and psychological), co-ordination of care in the community and grief and bereavement support."